onBeing: Max Bigdeli and Ginger Burns-Bigdeliby Jennifer Crandall
his interview was harder than some of the others. My ear wasn't attuned to how Max articulates. One of the physical manifestations of Down Syndrome is low muscle tone which can cause difficulties with speech. As my ear became more attuned to Max's pronunciation, I started catching up to what he was trying to tell me. It took me awhile. (Not a good thing when that's your job.) He was patient. Max also spoke a few words of Spanish during the interview. I had a hard time understanding him then too. Until he translated.
Ginger passed along the following websites for those interested:
National Down Sydrome Society: www.ndsc.org
ational Down Syndrome Congress: www.ndsc.org
Project: onBeing
Interviews: Fawaz "Tony" Ismail | Peter Ansoff | Talia | Carla Hall | Ismail | Gio Escalante | Bailey Orenia-Sessoms | Benjamin and Carol Kirsch | Lynne McGuire | Ken Patterson | Andrew Kaufteil | Lee Wheeler | Jeffrey Barehand | Alberto Garcia | Ron Daniels | Uzma Enayatulla | onBeing's Second Outtakes Reel | Chris Mulligan | Devon Sanders | Katheryn Phillips | Edward Fahnbulleh | Claire James | Max Bigdeli and Ginger Burns-Bigdeli | Tom Hipschen | Jacquelyn Einsel | May | Ryan | Scipio Garling | Sam New | Chris Mah | Naomi | Keith and Travis | Gladys Mitchell | Jessica Tibbets | Bob | onBeing's Third Outtake Reel | Heidi Fancher | Angel Gil-Ordonez | onBeing's First Outtake Reel | Danni Dawson | Courtney Blanchard | Sister Anne Elizabeth | Katy Chang | Buckley Jeppson | Gio Escalante | Sherin Nicole | Maragatham Ramaswamy | Monica Livingston
Fluid Media Viewer version 0.71 | Feedback and known bugs/issues | Developer Credits: Jesse Foltz, Lee Trout and Steven King
Project: onBeing
Interviews: Fawaz "Tony" Ismail | Peter Ansoff | Talia | Carla Hall | Ismail | Gio Escalante | Bailey Orenia-Sessoms | Benjamin and Carol Kirsch | Lynne McGuire | Ken Patterson | Andrew Kaufteil | Lee Wheeler | Jeffrey Barehand | Alberto Garcia | Ron Daniels | Uzma Enayatulla | onBeing's Second Outtakes Reel | Chris Mulligan | Devon Sanders | Katheryn Phillips | Edward Fahnbulleh | Claire James | Max Bigdeli and Ginger Burns-Bigdeli | Tom Hipschen | Jacquelyn Einsel | May | Ryan | Scipio Garling | Sam New | Chris Mah | Naomi | Keith and Travis | Gladys Mitchell | Jessica Tibbets | Bob | onBeing's Third Outtake Reel | Heidi Fancher | Angel Gil-Ordonez | onBeing's First Outtake Reel | Danni Dawson | Courtney Blanchard | Sister Anne Elizabeth | Katy Chang | Buckley Jeppson | Gio Escalante | Sherin Nicole | Maragatham Ramaswamy | Monica Livingston
Fluid Media Viewer version 0.71 | Feedback and known bugs/issues | Developer Credits: Jesse Foltz, Lee Trout and Steven King